Today it was confirmed just how mellow Mason can be. He had his second visit to the orthopedic clinic for his clubfeet and slept while they sawed off his casts. He also slept through the reapplication of new casts. 
- These casts are shaped differently than the last ones, with his knees bent a lot and feet flexed out ‘like a duck’. It’s really awkward to get pants on and off so he may wear a lot of nightgowns for the next week. If he was a girl dresses would certainly be handy – LOL.
- The doctor was very pleased with how well Mason’s feet have corrected with just one week of casts. He said we may move to the brace next week, possibly the week after, instead of doing four more casts. We’ll just have to wait and see.
I’m grateful for another good doctor’s visit! Tomorrow we’ll have the next appointment – our first Myelomeningocele Clinic (Myelo Clinic for short). There are 13 specialties there who may take a look at and help treat Mason. It’s going to be a long morning but the 6 older children will be staying home to play with another homeschool family from church. They’re thrilled, these are some of their favorite friends. My hope is that after getting all these beginning checks done Mason won’t need to be seen at Myelo clinic for at least a month. Who knows?
Oh, and another random call came today – the geneticist who ran all sorts of tests on Mason’s blood got the results for everything back. You wouldn’t believe how many genetic issues they check for that can come along with Spina bifida or clubfeet. It turns out Mason has NONE of them – what a blessing!
Wonderful news!!! Glad you had help with the kiddos. I really wished I lived closer to help out. Hugs.
ReplyDeletei am just so amazed at the human body and spirit. To have arrived with his spine actually visible to this amazingly bright eye, beautiful baby is just such a testament to the wonder and power of God. Thanks for sharing this journey of miracles with us all.
ReplyDeleteYes a little blessings indeed!!!!!!!! My kiddos just love looking at what news we can thank God for when I read about him. They have talked about him so much since we started praying for him so many months ago, Its nice that they are finally able to put a face with their prayers!! He sure is growing!! XOXO
ReplyDeleteI just came across your blog. Touches my heart to see how strong your with is even when met with such heart wrenching obstacles. I have a cousin that was born with the same issues. We were told he would never live past twelve, fifteen at the most and that would be if e was healthy enough to have the shunt replaced. I am proud to say he is twenty two years old now. He is paralyzed from just above the waist down. Your lil guy sounds like he has more movement and feeling, praise God. Technology has changed so much over the last twenty years, I just know your baby will do fine. Oh, and another thing, my cousin has never had his shunt replaced! The doctors are amazed that he has done so well. Just goes to prove that they can only do what they can do, ultimately the rest is in God's hands. Will be following and praying for your lil man and your entire family.
ReplyDeleteWe are SO happy that things are going well. Having a son with Down Syndrome, it turns EVERYTHING they do into a miracle. It is a wonderful experience! Good luck with all your doctors and such.
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