Today Grandma came over to watch the siblings while Mason went to get fitted for his HKAFOs. Remember last time we had to come home without them because things needed changed and customized. We started out relaxing and looking at books until the orthotist arrived. Much to our surprise he had taken the time to put the AFOs and plastic for the back on to the frame already, saving us some time. Just a few minutes and this is what we had:Mason wasn’t sure about it all at first but he quickly decided standing was better than he thought. He had been crying when we laid him down to strap him in. He stopped shortly after he realized he was upright.Only one thing stood out as needing adjusted. If you look closely at this picture you see Mason’s right knee is bent forward. Apparently this joint is looser and needs extra support. We played in the brace for a while so a special strap could be crafted. Then we had to give up the brace so the new strap could be riveted in place. It worked perfectly and we were on our way home!Mason’s siblings had many questions when we brought the HKAFOs home. Why does he need them? What do they do? Can they have some cool braces too? I love the enthusiasm and easy acceptance children have of new things.Mason got to play standing up at the couch for the first time. It was sweet to watch him enjoy new things. Doesn’t this face say it all? He was thrilled to be standing.Here is a closer look at the fun design on the plastic portions of his HKAFOs.
Where do we go from here? Well, we don’t know. We have our Physical Therapist in next Monday and she’ll help us set some goals on how long to use the HKAFOs each day. Until then we’re doing 15 minutes a few times a day. After each turn we have to check all of his skin to see if any places are rubbing or putting pressure on Mason’s skin.
What are some of the benefits to Mason with just standing?
- Strengthening his bones.
- Working core muscles and balance in a new way.
- Developmental strides as he sees and interacts with the world from a new perspective.
- Improved bowel movements.
That’s what’s new in our corner of the world!