Things have been pretty quiet for Mason since our last update. I heard today that his HKAFO custom parts are ready and the fitting will take about 3 hours. Yikes! That is an appointment I don’t want to bring any of the other kids along to so I’m only able to schedule for a Monday when Daddy will be home to watch the rest – and one when Mason does not already have appointments. Next available – February 18th! A whole month from now. In the mean time we’ve reached a milestone – it has been 2 months since his last brain surgery! This shunt seems to be working well and we’re praying it stays that way.
We are seeing Mason use two hands to play while sitting for brief moments (about 5-8 seconds). Progress is progress! His abdominal and back muscles are getting stronger and his balance improves.
He still tries to pull up on the couch by brute strength. More and more we find him in this kneeling position. He sits there with his hands for balance for a while. He has started trying to clap. Yes, just now. Remember it’s hard to clap with two hands when you can’t sit without using those hands to hold yourself up.
We are still struggling in the solid foods department and by solids all I really mean are pureed foods. Mason eats 2-3 times a day but it is very hit or miss if he’ll love it or hate it. We’re playing around with flavors, temperatures, and textures but there is no real predictable pattern to what he likes. He still is getting his main nutrition from his special formula.
I think those are the main updates for now!