There are many things I never thought to expect as we waited for Mason to be born. Little things that come because of his Spina Bifida. For example it is a constant battle to keep the skin on Mason’s bottom healthy. Because his muscles have been affected by the nerve damage he poops constantly (he’s got low muscle tone in his anus).
Constant poop = skin breakdown. His bottom is red, sore, and sometimes even bleeding. We still have not found a great solution. Right now:
- We change his diaper often.
- We don’t use diaper wipes (the alcohol burns the skin) so instead use cloth wipes with plain water.
- We use a barrier spray (Cavilon No-Sting) that creates a thin film over his skin to help keep bacteria out.
- We put a thick layer of ProShield over that to keep moisture away.
- We’ve tried disposable diapers and cloth diapers (we’re generally a cloth diaper family) and see no difference in how his skin does. That means for sheer cost effectiveness we use cloth unless somebody gives us disposables. Mason goes through 15-18 diapers in a 24 hour period.
- When his skin breaks down badly he spends time with a bare bottom. That’s an event in itself! He’s got to be laying down on layers of towels or cloth prefolds so each time he leaks more poop or pees we can remove another layer so he is on a dry layer. We have to put cloth prefolds over his legs and the shoes/foot brace so they don’t get wet or poop covered. Those need changed if he sprays especially far.
We’re most likely heading in to Myelo clinic to see a skin specialist of some sort next week in the hopes they can come up with something better. I think we’re going to try Desitin diaper rash cream for a day or two and see if it helps any. I’m also researching other suggestions from parents with a child who has gone through this on the Spina Bifida forum I’m on.
What about you? Is there anything you never thought to expect when you became a parent? I would love to hear your stories in the comments!