A few updates are in order:
Mason went back to the orthotist for an adjustment on his foot brace and bar Wednesday and it seems to be working a bit better. His heel had been slipping up off the sole of each shoe a lot. I’m not sure we’re completely adjusted, but it’s much better. You can read more about that appointment on my homeschool blog here because it ended up being a field trip with all 7 of my children!
Mason’s bottom is beginning to heal.
It is really frustrating because it gets so bad (bleeding as the cells try to regrow and you wipe and break them trying to get the poop off him bum) and then it begins to clear up for no apparent reason. We tried Desitin and it did NOT help, so we switched back to Cavilon No-Sting and Proshield. I spoke to the Wound Care Specialist at Children’s hospital and we’ve got Ilex paste coming in the mail to try. Of course it has yet to arrive and his bottom is healing. Still, we’ll try the Ilex in the hopes that we can avoid such a bad skin breakdown next time.
The Ilex paste is a thick barrier that adheres to the broken and healing skin. We are supposed to apply that and cover it with a thick layer of petroleum jelly. At diaper changes we are to wipe off the poop and only what petroleum jelly needs to come off. The goal is to not disturb the Ilex paste which is protecting those healing cells. Then we apply more petroleum jelly. Once a day we are to soak Mason’s bum in water and clean off all the Ilex, air dry his bum, and reapply a new layer of Ilex paste and petroleum jelly.
When we are in this process Mason cannot wear cloth diapers (the Ilex and petroleum jelly will ruin the diapers’ ability to absorb pee), so we’ll have to have disposables on hand a lot. I’m open to suggestions for inexpensive places to buy diapers (and what brands are cheapest). So far we’ve used both Parent’s Choice (the WalMart brand diaper) and Luvs and Mason seems to do fine with either. I’ve heard that Huggies has a line of fragrance free/natural disposables. That might be worth paying for to avoid a lot of chemicals and things that will aggravate the open sores/healing skin. I just don’t know yet…