- Scoliosis brace - this is the one that works well, fits, easily, and we've had no major issues with. He wears it at night when he is sleeping.
- AFOs (Ankle Foot Orthotics) - these short braces look like little boots and hold his feet in a neutral position, keeping the tendons stretched out. These mostly fit but we are having trouble with pressure on each heel - we needed changes.
- HKAFOs (Hip Knee Ankle Foot Orthotics) - these braces go from Mason's waist clear down to his toes in a combination of straps, plastic, foam, and metal. They hold his body in a standing position but give him no balance. They are used in conjunction with his Dynamic Stander, a wheelchair that he is upright or standing in. Why standing? While Mason will never walk functionally standing has many health benefits for his bones and body systems. This bracing has been the most problematic over the years due to muscle contractures and growth. It is difficult to fit Mason currently because his left knee doesn't straighten all the way and things apply pressure in weird spots, and sometimes it has been impossible to fit because of foot contractures that keep his foot from going to a flat standing position. Pressure can damage skin.
We headed to the orthotist yesterday to refit Mason's HKAFOs now that his right foot surgery has been done and healed and to adjust his AFOs. He was excited. As is often the case, this appointment took a couple hours and we will probably go back again for more adjustments in the next 6 weeks. Here's what was done: