Today I have a moment to update everyone on Mason so I’m grabbing it! The last week has been a pretty nice, calm week. Mason’s sleep schedule has been shifting ever so slightly in a bad way. He’s decided his official bedtime is 11:15pm. From about 8:00pm on he’s awake and by the end of it just a wee bit grumpy. Of course, so am I… I’m just not a night owl. I won’t complain too loudly though because when Mason does finally go to sleep for the night I often get a 6 hour stretch of sleep before he wakes again.
Another big update is the urologist changed his catheterization schedule to once a day! We were getting a fairly low volume out every 12 hours and so now we’re trying out cathing once every 24 hours. So far we’re still getting low amounts of urine out so we’ll be trying this out for at least two weeks and then checking back in with the urologist.
Today was a special day for Mason – it was his blessing day at church. “Every member of the church of Christ having children is to bring them unto the elders before the church, who are to lay their hands upon them in the name of Jesus Christ, and bless them in his name” (D&C 20:70) My dear husband performed the ordinance.
Upcoming for Mason in the next two weeks are a few big things:
- He gets to meet his aunt and four cousins this week when they fly out to visit for a month. His uncle is serving our country with the Army currently in Afghanistan so Mason has to wait a while before meeting him.
- Mason gets his casts off this Friday and moves to a foot brace for his clubfeet. Yay! I’m going to be so glad to see those things gone. We’ll also have to start doing some physical therapy here at home to get his legs to stretch out straight again – his tendons/ligaments in his knees have tightened up from being bent in one position for over a month and his legs won’t stretch out straight anymore. Not surprising.
- The following week Mason has another brain ultrasound to check on how his shunt is working and will see Dr. J the neurosurgeon as well.
With that update it’s time for me to go snuggle some kiddos!
I have been following your blog for some time, and wanted to thank you for sharing your story. I have a friend that is adopting a child with Spina B. and you have not only been a great source of information for me but also a great encouragement. You have a beautiful family and I wish you all the best. I am so thrilled for Mason that he has such a wonderful mom to face all his challenges head on and with such grace.
ReplyDeleteHeather
It sounds like he is doing so well.
ReplyDeleteWhat a wonderful report! He looks fantastic. I hope you are holding up well, and that your late nights don't last too long.
ReplyDelete-Catherine