Just thought I would share some updates on Mason today. First, as this picture shows, he is enjoying getting into things. That green bin holds some of his toys and he took great delight in emptying it.He does this when he’s ready to get out of the wheelchair.
We received the official reports in the mail from Mason’s brain and spinal MRI last Friday. Our neurosurgeon sent them in case we wanted to have specifics beyond our chat about the results. Even with all the reading and studying I’ve done there are things I’m needing to look up. Doctors truly speak and write in their own language! The gist of what I’ve learned from the report so far is that Mason’s brain does indeed extend down into his neck vertebrae to about the 3rd vertebrae, that his brain has some abnormalities in shape (I’m still trying to understand which parts), and that most things look as expected for his diagnosis. His spinal vertebrae begin showing a defect (cracks/opening at L3), there are some nerves going into odd places in this spot, and so on. This morning I was lotioning Mason after cathing and diapering. Halfway through dressing he rolled away and sat up. See how pleased he was with himself? The last few days Mason realized he can play with his feet. Of course it means I’m having to check his feet to see if he’s bitten them hard enough to draw blood because he can’t feel his feet. We are trying to keep thick socks on as an extra layer of protection.
One last thing I don’t have a picture of. Mason has figured out how to roll backwards in the dynamic stander. Now he can roll up to a wall and instead of being stuck he can back up. So neat to watch him figuring things out!